Back in December 2011 I had my diseased colon removed suffering for years with ulcerative colitis. For the next year I had the ostomy bag which was a battle to avoid irritations andd mild infections. Then in November of 2012 I had a JPouch fashioned by Dr. Fleshner at Cedar Sinai. Then in December Dr. Fleschner attached the Jpouch and no more bags. However in the last 5 years I have suffered several pouchitis which is the same cramping, multiple bathroom event (diahhria) and bleeding in my diarhhia. I’ve had several sigmoidoscopies in 5 years and have taken Humira to help with uclers. My biggest concern is in the 5 years I suffer from fecal inccontinance. I am going through my bouts of medications and face the final option by seeing a colorectal surgeon to discuss what we can do. Th circular ending of the pouch is in question and the Jpouch is tilted to one side versus straight up and down as other Jpouch patients.
I am deeply depressed because living with the Jpouch is going to be a forever incontinent problem which terribly depresses me everytime it happens. Or go back to the bag facing the same issues I had before. I think this decision iss the tougest decision I can make at this point of my life. I am 68 years old.
Is ther anyone out there that can give me insights on my dilemma.
JPouch Versus Having A Colostomy