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Colostomy

I have a temperory colostomy following

removal of an early rectal cancer. T1-T2

i had a few surgery related challenges 

but I am now home and getting better. 

Coping with colostomy but look forward 

to reversal one day .

i am keen to hear from women who have 

had or are considering reversal . 

On my discharge all the nurses 

have encouraged to return for the 

reversal. 

Thanking you all for your time. 

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Colostomy

Colostomy Reversal Experiences

Hi. Two weeks ago I had my colostomy reversal surgery and wonder if others out there would be willing to share their experiences with me on pain, any issues after surgery (what I should look out for) and any long-term issues as a result of having the colostomy or reversal surgery. I only had my colostomy for 9 weeks before the reversal (got it early Jan 2017 as a result of emergency surgery to address a burst colon from diverticulitis. Thank you so much.

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Colostomy Reversal Experiences

Ileostomy Vs Colostomy

Hello, I am looking for information from anyone who has had a ileostomy and then had a colostomy.  How do you feel about the difference beteen the two?  If you had the ileostomy and now have a colostomy are you happy with the change?  I am interested in anything you can share about the two procedures.  I have had a ileostomy for 18 months.  I have been told I am not a candidate for a reversal and the doctor has mentioned possibly doing a colostomy.  I am wondering if going through another major surgery and recovery is worth it.  I am 69 years old and function very well with the ileostomy other than the hernia I have developed, which will have to be delt with as well.  Sincerely, Sunnyone 

 

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Ileostomy Vs Colostomy

Colostomy Mucus Amount?

Can someone please tell me how much mucus build up there is from a colostomy, end colostomy? i have an illieostomy and cant manage with the amount and size with my current issues.

 

I am after how frequent you have to go and pass a mucus plug, the firm hard ones.

Is it once a day once a week or once a month?

 

Thank you

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Colostomy Mucus Amount?

Colostomy Reversal (VATER SYNDROME)

Hello everyone,
I had a question about reversal of a colostomy. I have had my colostomy since I was born and had it reversed just a year into life. Then after another year or so things were not working and I was getting enemas and rashes so they gave it to me once again. Now at 24 I want to give it another try and see if it’s possibly. Does anyone have stories of having it their whole life and then getting a reversal and hopefully successfully??
I also have something called VATER syndrome, it is very rare and if I recall I had an imperforated anus and this is one of the main reasons that I had the colostomy. My mom also believes that the docter said that I may have no nerve endings in my colon.

If anyone has a little information good or bad that they could provider for me, I would appreciate it. My whole life has kind of been a struggle with it. I was very athletic but I wasn’t able to do any kind of sports because I would have accidents and I would not be able to keep the patch on. It seems like I still have problems that if I have an accident because it becomes majorly loose.
Thanks!!

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Colostomy Reversal (VATER SYNDROME)

Colostomy And Normal Life

Dear friends:

I had surgery for colorectal cancer on Aug 22 and have been recovering nicely since then. Since the tumor in my descending colon was too close to my rectum, the surgeon decided to remove my rectum and replace it with a colostomy. Prior to surgery I had full radiation treatment (23 sessions). Everything went well, the effects were temporary and I am left with 6 of the original 7 feet of my colon. I use a colostomy bag (which can be quite expensive, as you all know).

After two months I still feel pain in my abdomen and of course my behind was sealed and I guess a lot of this is a matter of adjustment. I have solid stool, and I consider myself lucky to be alive, etc. etc.

I recently heard about colostomy irrigiation and I am very interested. I talked to my surgeon and nurse about it. The main issue, they said, is that I am on a strict macrobiotic diet (and have been since Dec, 2005 and I attribute my strong immunity and perhaps my survival to it). They said that for a colostomy irrigation to work I would have to switch to a more normal diet so that I would only have one or two bowel movements a day instead of the frequent ones I have right now as a result of my macrobiotic diet (plus lots of white fish). Actually I eat two or three meals a day and each one is followed by a big bowel movement (sometimes in the form of two or more colostomy bags).

Is anyone on the forum on a macrobiotic diet or knows enough about it to answer my question? Should a macrobiotic diet prevent me from colostomy irrigation?

TI would very much appreciate it if you could share some of your experiences with me.

I am told repeatedly that a colostomite can live a normal life, even including swimming, hiking, etc. etc. And that’s with colostomy bags. Naturally, colostomy irrigation would make it even better.

It’s been 10 weeks since my operation. Fortunately, due to the excellent medical team at Knoxville’s Baptist Hospital, I survived everything as best as can be expected: no metastasis anywhere, local or distant, no lympth nodes. The surgery was preceded by radiation, which killed my rectum and the tumor inside and the multiple lymph nodes in it. All tests, including a PET scan showed that there was no trace of cancer in my body.

I attribute much of that also to my macrobiotic diet, which I have been following since Dec, 2005, when I was first diagnosed. It has given me a very strong immune system, and that is probably what protected me from metastasis until my operation. It also helped to protect my colon during the 5 weeks of radiation.

I have been making a lot of progress, and I thank God for that. I walk two miles every day (though with some difficulty since my thigh and arm muscles have lost their muscle tone — I lost 70 lb before surgery, down from 175 to 105). I am now gaining weight (I now weigh around 120).

My surgeon’s nurse says that if I walk 2 miles a day I will be getting my physical therapy and that my thighs and arms will fill out and return to normal strength but that it may take as along as a year. Others have said the same thing.

All of that is fine and good, but there are two issues that I am unclear about:

1) Because my rectum was removed, my behind was sewed up, that is, sealed. I feel constant low-grade pain when I try to sit or walk. My question: will my behind eventually stretch and adjust and feel completely normal?

2) I feel as if something is pulling me up front where my stoma is. My surgeon says that my stoma had to be surgically attached and that is why I feel that it’s pulling me inside. Again, I am wondering what your experiences have been? My surgeon says that the stoma has to adjust to my body and organs inside and vice-versa and that this will eventually happen.

From your experience, will it? It doesn’t matter if it takes a year. The question is: can I look forward to an end to the pain both in my behind and in my stoma? If so, then this will make a big difference and allow me to put up with the temporary situation.

Thank you all so very much and thank you for your moral support.

Benjamin

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Colostomy And Normal Life

The Anatomical Apron By Joy – Colostomy Demonstration

We are proud to present Joy Hooper’s video on ‘What is colostomy?’

From Joy:

As a Certified Wound, Ostomy & Continence nurse, I feel that I have been given a very unique calling and duty to provide care and education to patients and their families. I view my nursing as my own personal ministry, and it is by far the most meaningful and enjoyable challenge that I have ever had. I thoroughly enjoy every minute that I spend giving patient care, teaching, and helping my clients adjust to and overcome the changes that have occurred in their lives. From this end, I am always looking for ways to make my patients’ lives just a little bit easier and for ways that they might better understand what they need to do to move on with their lives despite their health problems.

The Anatomical Apron by Joy!! was conceived as an educational tool which helps patients and others understand the physiologic and structural changes that take place when ostomy surgery happens. Many have already found it to be extremely useful for bedside teaching and in classrooms, and I sincerely hope that you will enjoy using it as much as I have enjoyed developing it to share with you.

MedicalCraft is a small, home-grown company but we have plenty of big ideas which we are currently busy with. We hope to have more unique projects to add to our line of healthcare, instructional, and geriatric items very soon. We look forward to hearing from you about any of our products, and we certainly welcome any suggestions and ideas that you may have!

Joy Hooper, BSN, RN, CWOCN

Here is a link to the Anatomical Aprons website.

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The Anatomical Apron By Joy – Colostomy Demonstration

Urge Incontinence And Colostomy Surgery

Hello I’m Richard. I am a relatively new member, but also new to using this message board. I really need some help please.
I’ve had my colostomy a long time and am used to living with it now. However, I suffer from Urge Incontinence, which was caused by the colostomy surgery. I’ve got by with a good system for coping with it, but it’s worsening. I’ve got the medical side covered, been seen by urologist and about to be seen in the continence clinic, but feel it would really help if I could chat with others who are in the same situation. I find that wearing a nappy, as well as a colostomy pouch can be a bit hard sometimes.
This has been hard to post, because I find it embarrassing, but I believe that I can’t be the only one on a site like this.
If anyone can help, I’d love to hear from you please.

Thank you again and best wishes
Richard

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Urge Incontinence And Colostomy Surgery

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