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5 Months Baby Colostomy & Jejunostomy

Hello All, Sorry for the long story, couldn’t keep it any short. My 5 month old daughter (twin) was initially (August 2016) undergone colostomy surgery due to colon perforation. Her bowel movements were all well until she developed a severe small bowel obstruction after one and half month post colostomy, therefore she was operated once again and 20cm of jejunum (small bowel) was removed which was in clinically bad state leading to jejunostomy.

With 4 stomas, it had become an impossible task for the doctors to maintain her dehydration and electrolyte levels. Thus it was decided and performed stoma reversal on November 24th 2016. At the time of reversal the surgeons had an exhaustive look at the condition of the intestine (anastomosis leak was feared due to the damaged jejunum) and confirmed the healthy state of small and large bowel. They also performed a barium dye study on the unused large bowel before stoma reversal which was successful and shown no obstruction.

Post stoma reversal baby passed stools on the second day. She was on parental nutrition and nothing was fed orally for almost 5 days post-surgery. After 5 days oral feeding started at 5ml per hour which she tolerated very well for one full day and then developed this vomiting reflex. Doctors suspected early intestinal adhesions or obstruction and for which they decided and performed a prolonged barium dye test which included 14 sessions of Xray at various intervals on last night and the outcome of the scan is clean. NO obstruction was seen.

Anything more than 7ml/hour she’s unable to tolerate and pukes (Yellow and White milk) multiple times a day, it is followed by symptoms like lots of irritation and excessive crying. This still continues  We are trying everything – Burping, feeding in erected position, changed her sleeping position to slightly elevate.

How long it takes her to settle down on the feeds? Am afraid if she again developed any partial obstruction (however she’s passing stools at least twice a day) It is been 4 and half months since she was hospitalized and the journey is still continuing….

Regards

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5 Months Baby Colostomy & Jejunostomy

Open Colostomy Reversal And New Temporary Ileostomy

  Long story short:  On April 20,  2013 my colon perforated due to diverticulitis.  I arrived by ambulance to the hospital already in full blown septic shock.  I was in the operating room for 5 hours and then transferred to ICU on life support.  My family was told that if I was alive in 72 hours I might have a chance but they should hope for the best and prepare for the worst.  Five days later I awoke in ICU and taken off of life support.  I spent the next two months between the hospital and a nursing home – please note I am 53 years old female with two college age sons.  The midline incision went from my breast line to the top of my pelvis and due to the overwhelming infection the wound was left open with retention sutures (thick wires running in and out).  Added to that was a Hartmann colostomy.  Fast forward 6 months:  Surprising everyone, I returned full time to work in September and am now gearing up for my reversal.  Just found out though that since there was so much intestinal damage that in order to do the reversal I will also need to have a temporary ileostomy to allow the colostomy takedown to heal.  Six months after this I will be able to have the ileostomy reversed.  Has anyone else had to do this?  Both additional surgeries are open (not laparoscopic) and closure will be by staples.  If so, how long was your recovery time from the colostomy takedown and new ileostomy?  I feel so great that I am now getting worried that I will be laid up for a long time.  Any input is appreciated!  Thanks!


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Open Colostomy Reversal And New Temporary Ileostomy

Having Colostomy Reversal Thursday October 2 2014

Almost 4 years to the day when my colon perforated from diverticulitis, walked into a E.R. and had emergency surgery within 5 hours. It was a Sunday around midnight when they began. Honestly I did not think I was going to make it. Thereafter, I never really thought I would have it reversed; and frankly, I am used to having it and managed it well. As I have said everything [and I mean everything] is about your attitude. Everyone has or will have some challenge, some medical issue to confront. It was the colostomy that saved my life. In certain other countries this would not be possible; people would not survive.

Since we take things for granted a lot I have been in the gym more, played more tennis and got stronger than ever imagined. WHy. Because it was a challenge to do so with a bag. I also got married 3 years ago. Now my wife in May, at age 56, was diagnosed with breast cancer. Perfect health; routine mammogram. Such is life! Yet she is urging me to have this reversal, and will take care of me before starting her radiation. See there is love after colon surgery. Just have to find a good mate. A little bit of luck and a little bit of opening your mind to who might be a better partner than you might have thought in the past.

Honestly I had to think about having a reversal at this age. If I did not have this surgery… it would not change my life. I thought a lot about it and have trepidation with surgery again. But it appears I am healthy enough to take the shot. I will miss the colostomy. Sounds weird. But I looked at it as special knowing that the past 4 years would not have been possible without it. The products they have today to me, make it in some bizarre way, almost convenient; never needing to find a toilet. I use the closed pouch.

I understand that mine is a colostomy which made it easier to manage. I do take a small amount of kaopectate, and small amount zantac daily when I want it to stop if I have an important event or activity and for me this has worked well.

I know that without this website my life would not have been the same. I learned so much and really got a perspective on things. There are so many courageous, compassionate people on here. Amazing how understanding and open-minded we all become when the shoe is on our foot, and not the other guy’s. Like I always knew [and said] one does not know their own strength or capabilities until they are confronted with challenges. Like a test in school; you just don’t know what you really learned… until you see the questions.

To every member I wish all the best. This wish includes continued strength, a positive mindset in difficult moments and the spiritual and physical energy to overcome, and meet each challenge.

I confess being nervous. I don’t know why. Four years ago I was sick before I finally was convinced to go to an E.R. Thought I had the flu! Duh! I was in severe, debilitating pain, weak, de-hydrated, distended and had ‘poison’ leaking into my perineum. That surgeon was not a colon surgeon, he was an angel. This surgeon is a colon surgeon named as one of the best in Chicago. I really don’t like prima donnas… so hopefully he gets a good night’s sleep, lays off the bottle and remembers what he learned in medical school. LOL. But I survived that earlier 50/50 outcome surgery, hit the ground running thereafter and and will trust this time it will be a good outcome.Hopefully the pre-op preparation and colonoscopy, will be the worst part.

I will come back on this site to report so others who are considering having a reversal, and those who cannot, will gain some knowledge from my experience.

All my best,
Stewart [Sigmoid Freud]

 

 

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Having Colostomy Reversal Thursday October 2 2014

Colostomy And Ilestomy

I’ve had an ileostomy for about 3 yrs. Unfortunately it has changed my life soo much that I hardly even go out unless it’s for appts. When I had my first surgery done I ended up with a fistula which the doctor fixed. I have a hernia and another fistula. I saw my doctor about the hernia about 2 months ago and he will not fix the hernia unless I get a colostomy which of course I said no and was very disappointed about the visit. Well now after going to th ER because I had such pain in my abdomen and severe liquid coming out of me they discovered another fistula so anyway I see the doctor next week so I can hopefully get this fixed. I feel fine and haven’t had any problems yet. I just would really appreciate some comments on what it’s like to have a colostomy and what you have to go through etc etc  because I know my doctor is going to mention me getting the colostomy .

 

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Colostomy And Ilestomy

Colostomy Reversal, Hernia Repair And New Ileostomy

I need some advice on what to expect and encouragement.  I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it would cure all my problems.  My remaining tranverse colon was deemed to be unaffected by the crohns.  That surgery was two years ago and since then the crohns has appeared in my remaining colon and I also have a severe parastomal hernia which is painful as I believe it is restricting the colon as I get very sudden and explosive stoma output.
I am considering having the colostomy reversed and the hernia around it repaired.  My remaining colon would also be removed and a permanent ileostomy formed.  I’ve never had crohns in the small intestine so my crohns should be cured by this surgery.  I’m a bit concerned by the stories I’ve heard about the very frequent output from an ileostomy but this is a small price to pay for being healthy again.
Has anyone else had similar surgery and how has it improved your quality of life.  I would be very grateful to hear your comments.
Many thanks and looking forward to you replies,
Steve

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Colostomy Reversal, Hernia Repair And New Ileostomy

Colostomy Irrigation

I just had to share this.  I just started colostomy irrigation.  I was always getting fecal impactions that were very painful.  By irrigating I don’t get the impactions.  I used to take MiraLax, which would take 4-5 days to work and even then I would not be fully emptied out.  I have to say irrigation is not for everyone.  On YouTube there is a video of a man from (I think) Australia who irrigates.  His video is very informative.  Irrigation even allows me to wear a stoma cap instead of a pouch (around the house…not comfortable going out yet with just cap).  I feel like a new woman!

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Colostomy Irrigation

How Do You Handle Having A Colostomy?

Hi There
I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Our lives are pretty normal and we go about things the best we can but once in a while the situation gets to me.
I don’t know anyone else with an ostomy so I wonder how other people deal with it.
I think that we have lost friends and a big chunk of our social life since this happened. Not in an overt way but subconciously over the years. I feel its a little but hard to get close to new people due to the many emberrassing and stressful situations that could occur and have occured.
Does anyone else feel a little bit isolated?
Does everyone in your life know about the ostomy and do you keep it a secret or tell people right away?
Do you make an effort to conceal it at work?
Do you ever feel on edge in social situations.

I think the situations hardest on me is outing with new people involving food like parties and dinners and stuff.

I would love to hear your thoughts.

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How Do You Handle Having A Colostomy?

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