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Would You Get A Colostomy If You Had A Healthy Colon?

When I was 20 I inherited a rare neuromuscular disorder. The nerves overstimulate otherwise healthy bowels and cause 12-25 BMs everyday, including 2-3 overnight. I am continent but get very little warning, so I always have to be near a bathroom. I always have small BMs that vary between hard and soft stools. It usually takes 15 min just to have one BM. I also have frequent painful cramps that cause sweating and shaking. The condition is debilitating but not actually dangerous.

In the last 5 years my symptoms haven’t changed at all. I tested negative on all GI disorders including Chron’s, UC, cancer, parasites, and food allergies. I tried an anti-diarrhea medication which had no effect. I also went to a surgeon and got a neurostimulator implanted. It cleared up a urinary problem but had no effect on the GI issue. Since I got sick I started exercising daily and eating the healthiest food you can get. Lifestyle changes have been great for general health but haven’t improved the condition at all. Other than this disease I’m very healthy, trim, and fit.

I’m fortunate to be self-employed and able to work at home. But I may soon have to travel to keep my company running, and I’m unable to do that. I’m facing the possibility of losing my livelihood and ending up on disability when my savings run out. I finished college sick because I wanted to work, and I don’t want to lose a job that is important to me. This disease has completely claimed my life. I haven’t been able to date. I lost all my friends and hobbies. I barely leave the house once a week to go shopping. I haven’t left the city in five years.

I’m in the strange position of being a fit, intact person who could live a full lifespan with no bag. But that might mean losing my career and would mean living alone with no hobbies, friends, or girlfriend. On the other hand I could ask my surgeon to sever the end of a healthy colon and give me a stoma. I could leave the house but would have to go through life with a bag and a 45% chance of hernia. Because my intestines are healthy I could get a sigmoid colostomy, which is supposed to be the least invasive. This also allows irrigation.

Seems like most people here had to get the bag due to life threatening illness. But what if you had a choice? Would you chose between life as a reculse or life with a bag?

Would your answer change if you were a self-employed, financialy solvent recluse?

Thank you very much for your time.

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Would You Get A Colostomy If You Had A Healthy Colon?

Colostomy Help

I had an emergency colostomy June 5th and Praise God that I am alive! I am new to this group in hopes that I can meet some people and learn some tricks of the trade!

My question or problem is this:

I am getting a really good seal and using Convatec 2 piece and an elkin seal. I get about 5-6 days on the appliance. Lately I notice that my stool becomes a little softer (pancake a lot here) and when it does it seeps to the right only and burns or causes itching. The only thing I have found to work is to take 1-2 tablets of anti-diarreha each day so that my stool is harder and firmer. Does anyone else find they have to do this? I drink lots of water and I eat real well. I never have diarreha or stomach pains.

Looking for some hlep or thougths. I have tried changing appliance when it happens but it occurs almost everytime I pancake. I have tried oil and all, and nothing appears to work. Very frustrating. I never empty bag from the bottom, I ALWAYS open the 2 pience and remove from the stoma area. I AM FINE WITH THIS!

Thanks for any ideas or suggestions!

Lee Ann (Mesa Arizona)

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Colostomy Help

Rectovaginal Fistula And Colostomy

I am a neebie and was wondering if anyone has a colostomy due to a rectovaginal fistula. I have had the colostomy since June 2007 and have tried on 4 different attempts to have the fistula corrected. In January I am due to have another repair attempt using the gracilas muscle from my leg, then after recovery and if it holds, have the colostomy reversal along with a hernia repair. I am very apprehensive about this attempt to repair and really wonder should I go through with it or just keep the colostomy and just repair the hernia. Any suggestions???
Thanks,
Tracy

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Rectovaginal Fistula And Colostomy

Irrigation Colostomy

Hello  I started the irrigation process early this morning.  I had everything that I needed with me and for one strange reason or another it did not respond.  I placed teh cone in my stoma and low and behold nothing.  What did happen was that the water would filter out while the cone was in and fell into the sleeve but, not all of it 1.5 liters.  I am hoping that this model will work for me. I did reinsert the coe severa times.  Where did all of tha water go.  On my end it si 12:42.  It has been several hours know.  I am going to try again tomorrow morning.  Please chim in with suggestiosn or questions.  thanks

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Irrigation Colostomy

FIBROMYALGIA & A COLOSTOMY…ANYONE ELSE?

I was "diagnosed" with Fibromyalgia several months ago. I just now began taking the medication, because frankly, I don’t have the "tender points" and my muscles don’t give me problems; my large joints do. So I am not sure if that’s what I have.
My neurologist put me on Lyrica. I haven’t decided if I like it or not or if I will continue it.
Does anyone else out there have this same issue or have you been diagnosed?

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FIBROMYALGIA & A COLOSTOMY…ANYONE ELSE?

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