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Having Surgery To Convert Colostomy To Ileostomy. Have ?’s

Hi all,  I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work.  I know I have to get this done in order to get off the TPN and try to lead a more normal life and be able to eat again. All my doctors and friends have said I should get this done, so I will be getting my surgery date when I see my surgeon on Thursday July 1st.  Because I have had so many complications and have had so many infections and such, they said my recovery will be longer.  My prayer is that I will be out of the hospital and recovered before school starts back up in Sept. I teach.  Does anyone know if you can eventually flush the ileo?   I have heard different stories concerning recovery time, so I am assuming it could be anywhere from 4-8 weeks?  What are the best supplies to use for an ileo. I currently use Hollister. Thanks for your help.   Maryland Gal

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Having Surgery To Convert Colostomy To Ileostomy. Have ?’s

Colostomy Verses Ileostomy?

Hi,  I am new to the site and had a few questions.  
I had to have a colostomy just over a year ago due to a doctor screwing up my back.  I have cauda equine syndrome ( No bladder function and my nerves to my rectum stopped working) Since the colostomy I have had two revisions. For some reason my stoma keeps closing up. The doctor tried to put a scope through it to see what the problem was, but they could not even get the scope in an inch or two. I also have colonic bowel, (very slow moving), but when things do try to come out I have severe pain. Right now I am on TPN to get most of my nutrition. When I try to eat something more solid, I have more difficulty.  The surgeon says I should probably just have all the large bowel out and convert to an ileostomy.  Some days I have so much pain I am fine with this, but other days I am afraid.  I have had so many bowel surgeries and I am tired of of all the operations and just being in the hospital for sepsis and other infections. Has anyone had any of these issues or can anyone give some advise on what to do.  It seems all my doctors are encouraging to just get the ileostomy.  Help…….
Thanks so much

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Colostomy Verses Ileostomy?

Does Anyone Get Abdominal Blockages With A Colostomy

Hi There
I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Since he has had the colostomy he has ended up in the hospital with an abdominal blockage every year, 7-10 times a year. Its really hard to say what triggers it, could be stress, exhaustion, constipation, dehydration, eating something bad, etc, etc. We never know when it can happen and it comes on suddenly and very fast. He usually gets very sick and has to go to ER to get the IV and NG tube and spends the night or a few days. This has always been a very stressful thing for us and especially me, we have 2 young children and its getting harder and harder to cope with these episodes. I live in fear of them happening pretty much all the time. They mean all kinds of things, trouble traveling, cancelled plans, job worries due to sick days and all kinds of things.
I am wondering if anyone has a similar thing going on and if there is a way to prevent it.

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Does Anyone Get Abdominal Blockages With A Colostomy

Questions To Ask Surgeon Re: Colostomy & Ileostomy Rever

Hello forum readers.  I had a colostomy last August due to complications from colorectal cancer.  My tumor was at the junction of the colon & rectum, so some of each was removed.  It’s a long sordid story, but end result is they could not reconnect me during the original surgery last year and I’ve had the ostomy since.  I was done with all my cancer treatment by this past May (chemo & radiation) and scans & bloodwork so far show no recurrence, so I am getting ready to speak with my original surgeon about reversal.  More recently I had a colonoscopy (my first – I was only 42 when diagnosed) so they know about how much rectum is left and apparently it’s “enough.”  They cannot say for sure that they can reconnect me, it all depends on scar tissue and what the “real” length is, but the surgeons I’ve spoken with and both my oncologists have all encouraged me to try if that’s what I want.  If they can reconnect during the next surgery, then I would have an ileostomy to allow healing, and then 2-3 months later I could have the ileostomy reversed and hopefully be back to normal.  Or as close to normal as possible, anyway.

I’m wondering if anyone has a history similar to mine, and if so, what things were most important for you to ask about?  I’m mostly concerned about the function of my anatomy assuming they can reconnect, from a quality of life perspective.  Will I be running to the bathroom forever after, will I have dietary restrictions forever after, things like that.  I’ve come to terms with recovering from the surgery itself – which I’ll have to do whether it is successful or not – as I’ve done that before and know what’s involved.  And this time around I won’t be extremely sick like I was last year. 

If anyone has had similar experience and would be comfortable sharing advice or questions/concerns you had before a reversal, I’d appreciate it.  Many thanks.

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Questions To Ask Surgeon Re: Colostomy & Ileostomy Rever

Colostomy Emergency Kit Contents?

I am just reaching the point where I am able to go out socially for brief periods of time and would like within another month or six weeks to be able to get through a six-hour plane trip. I’d like to hear what people carry in their "emergency kit", advice on what and how much should always be with you, and what kind of thing you pack it all into. I’ve searched but haven’t really found any useful advice on this topic…

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Colostomy Emergency Kit Contents?

Looking For Children With Colostomy

Hi, friends.  I have been enjoying the updated topics and reading through your posts and stories.  Though… I’m still looking for another family (families???) who have a boy born needing a permanent colostomy; or an adult male that was born needing a permanent colostomy… just to share stories that are similar and bounce questions/thoughts back and forth.  

Everyone’s stories are so helpful knowing our challenges with bags/changing wafers, etc. And my heart rips when I read when some of our ostomy friends need prayers and special guidance …  but I really want to meet someone who is also experiencing the challenges we have with our little guy (2 1/2 years old).

Anyone…?

Thanks, friends.

-Ryan’s Mom

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Looking For Children With Colostomy

Question Regarding Health & QOL W/ Colostomy Vs. Ileosto

I’ll give much more detail about my situation soon, but I have a nagging and very important question to help me sort through things here.

I had a botched resection/rectopexy that has left me with a very poorly-functional colorectal area. I’ve been told the surgeon wants to do an ileostomy. To me it seems to clearly be a case calling for a colostomy (descending or sigmoid?). I was wondering, are there huge differences in what to expect health wise in the short and long term? How much energy should I put into second opinions and/or fighting for a colostomy vs an ileostomy? I’m very confused, but obviously a bit scared of accepting giving up the entirety of my colon when it clearly seems like only the final third is dysfunctional.

Any thoughts on life with a colostomy vs. life with an ileostomy would be very helpful for me right now. I know each case is unique, but I’m finding difficulty seeing information that goes through the basic differences in quality of life and/or what to expect, besides the consistency of stool changing.

Thank you very much.

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Question Regarding Health & QOL W/ Colostomy Vs. Ileosto

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